NICU Mommas - it can be hard to look back. But it NICU Mommas - it can be hard to look back. But it makes me that much more grateful, too. Bittersweet for sure. 🥹❤️

#nicumom #nicubaby #twinmom #takemeback
The beginning of fall with these guys! 🧡💛🖤
A big comfy sweater with button detail on the arms A big comfy sweater with button detail on the arms over top of a spaghetti strap pencil dress. Perfect and comfy for going into fall! Both are from @nadineweststyle - most of my staple pieces are! I’ve actually had this dress for a while and the top is a little “going out”, so this is a great way to wear it since we all know I’m not going out. 😆
Cohen and I enjoyed picking out fall books and doi Cohen and I enjoyed picking out fall books and doing some fun fall 🍏 activities at the library! This was on my fall bucket list, along with setting up a little book shelf display for seasonal books! I’m excited to get that set up and then we can go and pick out more books to swap out. 📚🎃🍁 #twinmom #boymom #fallactivities #fallbucketlist #fallbooks #sharethelex #lexingtonpubliclibrary
After 100 days in the cranial helmet we are finall After 100 days in the cranial helmet we are finally done! He wore it 23 hours a day most of the time. We slacked off a bit the last week or so due to him being a little sick and snotty. I was afraid he’d get overheated with a fever. His head is almost perfectly round now and I’m so thankful that we were able to do this. We weren’t sure how much correction he would actually get since we started a little late and his soft spot was not fully open. Thankfully, the helmet still worked perfectly for him! Thank you @hangernews for the wonderful care! #cranialhelmet #twinmom #boymom #hangerclinic #scaphocephaly #motherhoodjourney
Some days are harder than others. Yesterday was on Some days are harder than others. Yesterday was one of those tough days raising littles. But it’s funny, looking back at the photos from yesterday - I only see the joy. I don’t see the defeat or hear the screaming  or see the messy house I left to deal with today. 

We ate take out (they stole mine), we went on a walk to try and distract screaming babies, we did homework, we apologized to each other multiple times, we played Mario Kart, we identified an edible plant growing in our yard. 🌱 All good things.
Happy Caturday! 💙🏈😺 Happy Caturday! 💙🏈😺
Summer is fading out and fall is moving in. It’s Summer is fading out and fall is moving in. It’s bittersweet as always. ❤️ They’ll never be this little in the summertime again. 🥹☀️
Life lately. Collecting leaves even though it’s Life lately. Collecting leaves even though it’s a million degrees still, wrestling in the living room, Cohen the therapist, my twins kinda actually looking like twins 😆, big brother Landon reading books to everyone, playing games together, sick cuddles, and forever nursing my babies. 

There’s a lot going on, as usual. Life feels heavy right now. I’m carrying it the best I can. And in between all of that, there are these moments. ❤️
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Baby, Kawasaki Disease, Landon · October 3, 2016

Kawasaki Disease: Our Perfect Baby

Daddy & Landon
Landon’s heart cath on 9/19 went well. I realized today that I only posted a quick little blurb on Instagram after the procedure, so I thought I should write an official update of sorts. The results showed no aneurisms, which is what we were hoping for of course! The cardiologist does, however, feel that it is necessary to put him back on the half dose of baby aspirin once daily. I was hoping to avoid that. Especially since we are going into the flu season. Aspirin is not typically given to children and there are rare complications that can happen if a child on aspirin catches the flu. Reye’s Syndrome is the scariest complication. I have been reassured by the doctors that this is so (so, so, so) rare. But hey, so is Kawasaki Disease, so I don’t exactly feel at ease.

We went into the hospital at about 6AM that morning and we were able to go home around 3PM. The hardest part, of course, was letting them take him away. The feeling of the unknown. Waiting. And then afterward, he was so upset and I could tell he was in pain. I held him all afternoon. He was so tired and once he calmed down/had some Tylenol he slept most of the afternoon. The incision site (groin artery) recovery was not bad at all for him. By the next day he was acting like nothing happened. The bruising was the worst looking part but that has mostly gone away now. Overall, it was scary but thankfully it ended up being pretty routine/very complication free. Thank goodness.

He will most likely have to have another heart cath done when he is older/wanting to be involved in sports, just as a precaution. We are so thankful to have received good results overall. He is our perfect baby and you would never know all that he has been through by looking at him. Thank you to everyone who reached out to us to send prayers and good thoughts our way! We definitely felt them!

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In: Baby, Kawasaki Disease, Landon · Tagged: 16 months old, baby, Heart Cath, Kawasaki Disease, Landon

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